A new low for this dreary isle

Let me ask you a very simple question: if you had a kid who had a rare disease, and your only chance of saving your kid’s life was to take him to another country, should you be allowed to do it?

That was the question given to the British courts in the case of Charlie Gard, a baby who had a rare genetic disease called mitochondrial DNA depletion syndrome, which gradually deteriorates the brain and the muscles of the infant. There is no known cure, but in America one doctor, Michio Hirano, offered an experimental treatment. It was considered unlikely to have worked, but in any case the parents of Charlie Gard wanted to try it out. But Great Ormond Street Hospital wouldn’t let them try out any experimental treatment, because they decided it was futile, the British High Court ruled in their favor. The hospital withdrew life support for the child, not letting their parents do whatever they felt was necessary to save their child. And in the end, after a long legal battle, the parents gave up and decided simply to let him die, once they realized that it was too late to save him after all this trouble because Dr. Hirano told him that he examined him and found that, in some areas of his body, there was already no muscle left, and thus it is too late to save him. And even after that, the British High Court decided that the child would be moved to a hospice, and their parents wouldn’t get to spend more time with him before he died.

I feel nothing but contempt for the British system after all this. They denied a family their right to try any kind of experimental therapy to save their child rather than just let him die. The doctors know what’s best they say, that’s why it’s their business to deny the family the choice to so much as attempt to save his life. Shit like this is why the Americans are right to criticize we British for the way we do things. The British system is rotten. That is all I have to say.